Some family legacies get passed down from generation to generation. Much to her grampy’s chagrin, Isa has started to eat “bumps” in her “smooth.” For those outside of the clan, this phrase refers to a certain culinary aversion by some in our family towards things like nuts in ice cream or granola in yogurt, ie. no “bumps” in the “smooth.”
For Isa, her rebellious rejection of this family phrase has meant that over the last week or so, (more…)
For all of the hits that I’ve gotten on this story from people looking for a good CT scan of the brain, I thought this article - Blossoming Brains - was an interesting read.
For all of the summertime junkies… here is your fix.
We’re back for another addition of the Friday Foto Fix. Mostly therapy pictures & photos with mami & papi this week.
Don’t worry. She hasn’t gone on vacation for the summer.
I came across this blog a few days ago from a parent of a 14 year old boy with cerebral palsy. Maybe its like being in a secret society, but I can relate to a lot of what he writes about, even though I know little about the specifics of his situation, and he knows nothing of mine. For example, he writes:
“Ok, if you’re a parent of a special needs child you’ve heard it. Maybe from an older lady at church; or maybe in the grocery store; “you must be special people for God to give you this child”. Oh barf! All I want to do is scream (or maybe even kick that person in the shin).
I am not special; I would gladly let someone else be special. I have no special gift that helps me cope with the fact that I have a special needs child. I am a parent, not unique, but in a unique situation.
Some days I don’t feel like I can make it. I fight with my wife, I yell at my children… I guess that makes me a caring parent, not a special parent. So don’t tell me I’m special. Just tell me to hang in there.”
In a later post he adds:
“I sometimes struggle with the fact that people I would consider ‘complete dorks’ have perfectly healthy children. Why do they get a pass when I have to ‘go through the valley’? “They don’t deserve healthy children”, I say to myself.
I ask myself, “would I have a heart for children with special needs if I didn’t have one myself?” “Would my child be as spiritual and intelligent if he had been born without CP?” Good questions! I believe things happen for a reason. The problem is we don’t always get to see the reason. But the best part for me is that God has allowed me to see some of the reasons why. I feel blessed to see just a glimpse.”
I may be reading his blog, but he is reading my mind…
Sleeping beauty slept through the night - Psalm 127:2 is real: “for he grants sleep to those he loves.“
Because our Isa-capturing-device (aka. the camera) has gone from “misplaced” to “lost.” We haven’t been able to find it for 2 weeks now. Hoping to still find it, but hopefully we’ll have the Friday foto fix back next week.
This from Tony Blair - soon to be Ex Prime Minister of Great Britain:
“People often say to me: ‘It’s a tough job’ - not really. A tough life is the life the young severely disabled children have and their parents, who visited me in Parliament the other week.”
What a great recognition of the challenges we face, though not everyone took the comments that way. Now if I had the pay & celebrity status of Tony Blair…
This photo goes to Isa - who has been reconfirming the reality that is painfully obvious to everyone else: that she is a papi’s girl.
I would suggest rehab for all of you who emailed/called me about last week’s missing fix, but the American Medical Association has confirmed that there currently is not cure for the Isa fix.
The late edition is here - just in time for some late evening reading before you fall asleep.
This edition is chalk-full & loaded, so pace yourselves
I shouldn’t be up this early, but somehow the “habit” (ie. my daughter) doesn’t seem to take notice of the interuption in sleep. Anyway, here she is. Enjoy.
